Wednesday, May 9, 2012

A message from the APF (American Pain Foundation)

This is the APF Logo and this info was posted on APF's FB page at http://www.facebook.com/painfoundation :
"With deep regret and heavy hearts, we sadly inform you that due to irreparable economic circumstances, APF must cease to exist, effective immediately. On May 3, 2012, the Board of Directors formally voted to dissolve the organization.
The Board and staff have worked tirelessly over many months to address a significant gap between available financial resources and funds needed to remain operationa...l. Unfortunately, the economic situation has not changed in any meaningful way, despite our best efforts.

APF hopes to be able to transfer content from various information, education, and support programs to other organizations so that you may continue to benefit from the value these programs have provided to thousands of individuals and families across the country.

Your personal experiences in living with pain and seeking compassion, empathy and medical care often against the odds -- have driven our efforts over these many years. This includes enactment of key provisions of the National Pain Care Policy Act in the Health Reform Bill that led to a landmark report issued in 2011 by the Institutes of Medicine. This report documents the shocking numbers of US citizens that live with pain and calls for immediate changes to address gaps in care. Despite this, the current climate towards improving the plight of people with pain in the US continues to be precarious and hostile.

As you unfortunately know, the need for public outcry around the needs of Americans struggling with pain conditions is greater today than ever before in light of the multi-front assault occurring daily on our right to dignified care. Misguided state and federal policies are impeding access to appropriate and reasonable medical care for people struggling with pain, and deterring even the most compassionate medical providers from treating anyone with pain conditions.

It is therefore critical that each of you raise your voices singularly and together to demand the care you deserve. It is only by continuing to demand attention to the ever-worsening barriers and unacceptable suffering that change will occur.

Elected officials, policy makers, and the media need to keep hearing from each and every one of you so they are not allowed to walk away from the consequences of this over-looked public health and medical problem.

Please know that although APF will cease to exist, the resolve and commitment among individuals on the Board and staff remain strong."
_______________________________
Had to share this sad news with all of you! APF has been an amazing resource and a tireless advocate for legislation regarding all types of pain issues. APF will be missed and never forgotten!
**Please do whatever you can to continue spreading the word about pain topics; share your experiences with pain and caregiving; sign petitions in your area for pain related issues and legislation; contact elected officials, policy makers and the media ANYTIME it seems appropriate so that we keep PAIN in the spotlight.** 
Sending love and hugs to each of my Pain Brothers and Pain Sisters all over the world!! xoxo

1 comment:

  1. What a sad commentary; when we need a bigger lgiht on chronic pain the light becomes more suppressed because we do not get the attention, and therefore funds, that cip deserves. Thank you for all the work you have done.

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