**A LITTLE HISTORY About a poem everyone needs to read**
"When an old man died in the geriatric ward of a nursing home in GRASS VALLEY, CA. It was believed that he had nothing left of any value.
Later, when the nurses were going through his meager possessions, they found this poem. Its quality and content so impressed the staff that copies were made and distributed to every nurse in the hospital.
One nurse took her copy to Missouri.
The old man's sole bequest to posterity has since appeared in the Christmas edition of the News Magazine of the St. Louis Association for Mental Health. A slide presentation has also been made based on his simple, but eloquent, poem.
And this little old man, with nothing left to give to the world (supposedly), is now the author of this 'anonymous' poem winging across the Internet."
**************
Crabby Old Man...
What do you see nurses? . . ... . . What do you see?
What are you thinking . . . . . When you're looking at me?
A crabby old man . .. . . . Not very wise,
Uncertain of habit .... . . . . With faraway eyes?
Who dribbles his food . . . .. . And makes no reply.
When you say in a loud voice . . . . . 'I do wish you'd try!'
Who seems not to notice .. .. . .... . The things that you do.
And forever is losing . . . . . A sock or shoe?
Who, resisting or not . . . . . Lets you do as you will,
With bathing and feeding . .. . .. . The long day to fill?
Is that what you're thinking? . .... . . . Is that what you see?
Then open your eyes, nurse . . . .. . You're not looking at me.
I'll tell you who I am. . . . .... . As I sit here so still,
As I do at your bidding, . . . .. . As I eat at your will.
I'm a small child of Ten . .. . . .. With a father and mother,
Brothers and sisters . . .. ... .. Who love one another.
A young boy of Sixteen . . . .. With wings on his feet.
Dreaming that soon now . . . . ... A lover he'll meet.
A groom soon at Twenty . . . . .. My heart gives a leap.
Remembering, the vows . . . . . That I promised to keep.
At Twenty-Five, now . . . .... . I have young of my own.
Who need me to guide . . . . . And a secure happy home.
A man of Thirty . . . . . My young now grown fast,
Bound to each other .. . . . . With ties that should last.
At Forty, my young sons . . ... . . Have grown and are gone,
But my woman's beside me . . . . . To see I don't mourn.
At Fifty, once more, babies play 'round my knee,
Again, we know children .. . . . My loved one and me.
Dark days are upon me . . . . . My wife is now dead.
I look at the future . . . . . Shudder with dread.
For my young are all rearing . .... . . . Young of their own.
And I think of the years .. . . .. . And the love that I've known.
I'm now an old man . . . . ..... And nature is cruel.
Tis jest to make old age . . . . . Look like a fool.
The body, it crumbles . . . . . Grace and vigor, depart.
There is now a stone . . . . Where I once had a heart.
But inside this old carcass . . . . . A young guy still dwells,
And now and again . . . . . My battered heart swells.
I remember the joys . . . . . I remember the pain.
And I'm loving and living . . . ... . Life over again.
I think of the years, all too few . . . . ... Gone too fast.
And accept the stark fact . .. . . That nothing can last.
So open your eyes, people . . . ... . Open and see.
Not a crabby old man . ... . . Look closer . .. . See ME!!
Remember this poem when you next meet an older person who you might brush aside without looking at the young soul within.
We will all, one day, be there, too!
By: Jim Satnan
****************
I had to share this lovely man's touching wise words with all of you. My grandfather was diagnosed with Alzheimer's in his late 50's when I was about 8 years old. Our family watched this distinguished agriculture professor who had raised his 5 children (my Mom was one of them) on his Junior College salary while farming in the evenings to make ends meet and keep food on the table. My cousins and I have lots of fond memories of his retirement: fishing with him (which was his hobby and pleasure); going to the city dump to find "treasures" to fix--he would rebuild and refinish broken furniture with only hand tools; helping Papaw work in his beloved yard and garden; playing "hide and go seek" with him while he winked at us as we ran past him even though my grandmother didn't like us running in the house; looking forward to him rolling in the wheelbarrow filled with stockings that "Santa" had carefully filled for each one of us (including the adults); watching Papaw kiss his "sugar" (my Mamaw) every night before bed; and I could go on & on. By the time I was age 15, Papaw lived at a nursing home and my Mamaw visited him every single day even though she could barely walk herself. She resisted the move into the nursing home even when he got violent with her, because he did not know who she was or why she wouldn't give him the keys to his truck. The last time I saw Papaw he was locked in a chair he could have taken apart and rebuilt to perfection only 5 short years before. Alzheimer's robbed him of his mind and memories, but all of us in his family will be "living off" our precious memories of him until we see him again in heaven.
The poem brought back all those wonderful memories, plus living with chronic pain as I have for 16 years, I get that feeling of wanting others to "see me" for who I really am and not be blinded by my disabilities. "See me" for what I can still accomplish and not consider my life already over at age 39. "See" the athlete in me who pushes myself constantly, and not the me who is forced to "sit out" due to pain. "See me" as a dedicated supermom who could organize and run a girl scout event for 250+ little girls while changing a baby (my son who is 12yrs old now) and selling girl scout cookies out of the back of my minivan. "See me" for the consistently hard worker who never had to be told anything twice by the doctors and lawyers I worked for in my 2 careers, and not the unemployed homebound disabled person. Life does go by fast. Children grow up, and leave home as my 18yr old daughter did in August this year. People who you think you can't live without...Die. Our bodies change and wither as we grow older and wiser even if we do NOT live with pain or illness. Money comes and goes no matter how much you plan ahead, because NO ONE knows what the future brings. Its not predictable at all, and just when you think the "plan" is perfect, Life throws you a curve ball.
I have figured out a few things about this thing we call LIFE due to the huge mistakes I have made. Hopefully telling you my mess ups, will prevent you from making some of them,
**I respect all religions, faiths, and belief systems and accept you just the way you are and promote this on Pain Sufferers Speaak's Global Community every day of the year. Our community practices unconditional love and support for everyone with NO judgment and NO criticism. There is no wrong way to have faith and practice respect, in my opinion.**
These are my "gifts" to you and your sweet families all over the world--
1.) Do not waste a minute on depression and the blues. It sucks your energy PLUS sucks all the joy out of your life.
2.) Hold on to hope with both hands. If you lose it, life becomes meaningless and miserable.
3.) The people who are precious to you will NOT be here forever. Tell them how you feel about them every chance you get.
4.) When someone leaves you, let them go. They were not meant to be in your life anymore, and trying to "make" them stay NEVER works.
5.) REAL Love is RARE. NEVER take it for granted or throw it away.
6.) Count on GOD! Humans will be humans, and let you down sometimes no matter how much you love and trust each other.
7.) Pain and illness IS part of everyone's life, but they cannot RUN your life unless you let them.
8.) There will ALWAYS be someone worse off than yourself. Count your blessings.
9.) You CAN love unconditionally and agree to disagree.
10.) Judgment and criticism are NOT necessary. They are both a CHOICE you can and should avoid.
11.) Peace and understanding begin at home. If both do not live with you, I suggest you let them in before you find yourself alone.
"Be the change you want to see in the world." ~Ghandi
Wishing you all a Merry Christmas and Happy New Year from my family to yours!! No matter what you believe or what you celebrate....CHOOSE to make each day in 2012 a day of hope, love, faith, and never forget to pass on smiles. They are contagious and laughter always seems to be close behind. Sending you lots of love, gentle hugs for those who need them, long supportive bone crushing hugs to those who want them, and May God shower each of your homes and families with abundant blessings! Liz xoxo
You gotta hurt in order to know, fall in order to grow and lose in order to gain. Because most of life's lessons are learned in pain.
Showing posts with label Grief. Show all posts
Showing posts with label Grief. Show all posts
Saturday, December 10, 2011
Saturday, August 27, 2011
Recommended Reading For People With Pain and Illness
One of Pain Sufferers Speak's Support Family members asked me to recommend some non-fiction books for her. I have tried to find ONLY a few books I love!! Since I am always reading at least two books at a time, this could be a neverending list. These are definitely some MUST READS for all of us with pain and illness:
1) The Power of Positive Thinking
By: Norman Vincent Peale (For Everyone)
2) Day By Day
By: Billy Graham (For Everyone)
3) Outliers
By: Malcolm Gladwell (This book was instrumental in my forming Pain Sufferers Speak)
4) Blink
By: Malcolm Gladwell (Will help you make decisions in a new way)
5) A Fresh Start--How to let go of emotional baggage and enjoy your life again
By: Leonard Felder, PHD
6) How to Survive the Loss of A Love
By: Melba Colgrove, PHD Harold H Bloomfield, MD and Peter McWilliams (This book literally fell off a shelf and hit me in the head while I was going thru my divorce at age 18)
7) Don't Bet Against Me--Beating the odds against Breast Cancer and in life.
By: Deanna Favre (anyone with any kind of chronic illness MUST READ)
8) Parenting Isn't For Cowards--The "You Can Do It" Guide for Hassled Parents
By: Dr. James C Dobson (MUST READ FOR ALL PARENTS)
9) When God Whispers Your Name
By: Max Lucado (For Everyone)
10) Freeing Your Mind From Memories That Bind--How To Heal the hurts of the past
By: Fred & Florence Littauer
11) Careers For Women Without College Degrees
By: Beatryce Nivens (Great for needing to switch careers due to illness or pain)
12) How To Be Organized In Spite Of Yourself
By: Sunny Schlenger and Roberta Roesch
13) Personal Finance for Dummies
By: Eric Tyson (All of us have to live on tighter budgets once pain or illness causes loss of income)
14) Debt-Free Living
By: Larry Burkett
15) Make The Connection--Ten steps to a better body and a better life
By Bob Greene and Oprah Winfrey
16) Love Hunger--Recovery from food addiction--10 stage life plan for your body, mind and soul
By: Dr Frank Minirith, Dr Paul Meier, Dr Robert Hemfelt & Dr. Sharon Sneed
17) Faith & Doubt
By: John Ortberg (Helped me sort out my faith and anger at God over losing 2 careers.)
18) Love is a Choice--Recovery for codependent relationships
By: Dr Robert Hemfelt, Dr Frank Minirith, and Dr Paul Meier
19) When God Doesn't Make Sense
By: Dr James Dobson (Again so many questions about my faith due to disability at a young age.)
Its not a short list, but I hope these books bring hope and inspiration to all of you!! Enjoy!!
Love, Liz
Labels:
Attitude of Gratitude,
Chronic Illness,
Chronic Pain,
Disability,
Grief,
Healthy Self Esteem,
Homebound,
Hope,
Optimistic Outlook,
Pain of Loss,
Panic Attacks,
Positive Attitude,
PTSD,
Support
Thursday, June 23, 2011
A poem about chronic pain
November 7, 2006
This pain is present every day
Unyielding, oppressive, still there.
Why doesn’t it take a day off,
Who said, “Life is always fair?”
Inhabited by the unwanted
I feel victimized, possessed.
I ask myself all those questions,
“What did I do? Was I too stressed?”
How much is psychological?
How much is left to chance?
Will it get worse or better?
Should I take a reflective glance?
Depression displaced by anger
I felt helpless, betrayed by fate.
Blaming myself, my parents, my genes
I faced my own Watergate.
I began to count my losses,
Labored through my grief,
My life, my body, my ego
All vandalized by this thief.
What can I expect to change?
What is always to be?
It seems all I valued before
Is now questioned, constantly.
Daily pain has rocked my world
As war, earthquake and flood,
As my own Richter scale responds
By changes deep within my blood.
I felt alienated from other
Those so vital, healthy and tanned
While I was despondent, alone
An alien in my own homeland.
For awhile I wallowed and floundered
Kicked by the foot of fate,
Then one day I passed a mirror and said,
“This is your life. It’s getting late!”
Suddenly that’s when it hit me.
I’d had enough of that pit.
My life was leading me around
Instead of me living it.
I began to look for solutions
If this pain is always to be.
I had to find some hope in my life,
Imprisoned, I longed to be free.
I took a personal inventory
Of all that I have left,
Gradually I stopped asking, “Why?”
And began feeling less bereft.
Instinctively I reached out to joy
Laughter felt so delicious inside.
As it rippled through my body,
Bringing its healing tide.
I’ve learned to love each day
Even the dark side and strife
For hidden within the heartache
Is a seed of renewal, called life.
- Sue Falkner Wood
___________________________________________________

Sue Falkner-Wood is a retired registered nurse living in Astoria, Ore., with her husband, who is also an R.N. Sue left nursing in 1990 due to chronic pain and other symptoms related to what was eventually diagnosed as relapsing polychondritis/mixed collagen disease, a progressive inflammatory condition involving the cartilage and connective tissue and leading to degeneration of the joints. Unable to practice nursing anymore, Sue turned to writing to vent her pent-up energy, and she has been very successful at it. She wrote a humor column for six years for her local paper in California, and has published articles and poems in the Fresno Bee, Nurseweek, arthritis, lupus and chronic pain newsletters, and a college literary magazine. Sue takes a glass-half-full approach to her disease and says she tries to do something useful every day.
http://www.everydayhealth.com/blog/life-with-chronic-pain/?ht_archive=2011
This poem is word for word what living with chronic pain for 15 years has meant to me. So happy to pass it on for others to gain insight and HOPE from. Your perspective does matter and its something you can control. I hope you pick to be a survivor with a positive attitude and find an attitude of gratitude for your life.
Have a meaningful week!! Love to all!!
Liz : )
This pain is present every day
Unyielding, oppressive, still there.
Why doesn’t it take a day off,
Who said, “Life is always fair?”
Inhabited by the unwanted
I feel victimized, possessed.
I ask myself all those questions,
“What did I do? Was I too stressed?”
How much is psychological?
How much is left to chance?
Will it get worse or better?
Should I take a reflective glance?
Depression displaced by anger
I felt helpless, betrayed by fate.
Blaming myself, my parents, my genes
I faced my own Watergate.
I began to count my losses,
Labored through my grief,
My life, my body, my ego
All vandalized by this thief.
What can I expect to change?
What is always to be?
It seems all I valued before
Is now questioned, constantly.
Daily pain has rocked my world
As war, earthquake and flood,
As my own Richter scale responds
By changes deep within my blood.
I felt alienated from other
Those so vital, healthy and tanned
While I was despondent, alone
An alien in my own homeland.
For awhile I wallowed and floundered
Kicked by the foot of fate,
Then one day I passed a mirror and said,
“This is your life. It’s getting late!”
Suddenly that’s when it hit me.
I’d had enough of that pit.
My life was leading me around
Instead of me living it.
I began to look for solutions
If this pain is always to be.
I had to find some hope in my life,
Imprisoned, I longed to be free.
I took a personal inventory
Of all that I have left,
Gradually I stopped asking, “Why?”
And began feeling less bereft.
Instinctively I reached out to joy
Laughter felt so delicious inside.
As it rippled through my body,
Bringing its healing tide.
I’ve learned to love each day
Even the dark side and strife
For hidden within the heartache
Is a seed of renewal, called life.
- Sue Falkner Wood
___________________________________________________

Sue Falkner-Wood is a retired registered nurse living in Astoria, Ore., with her husband, who is also an R.N. Sue left nursing in 1990 due to chronic pain and other symptoms related to what was eventually diagnosed as relapsing polychondritis/mixed collagen disease, a progressive inflammatory condition involving the cartilage and connective tissue and leading to degeneration of the joints. Unable to practice nursing anymore, Sue turned to writing to vent her pent-up energy, and she has been very successful at it. She wrote a humor column for six years for her local paper in California, and has published articles and poems in the Fresno Bee, Nurseweek, arthritis, lupus and chronic pain newsletters, and a college literary magazine. Sue takes a glass-half-full approach to her disease and says she tries to do something useful every day.
http://www.everydayhealth.com/blog/life-with-chronic-pain/?ht_archive=2011
This poem is word for word what living with chronic pain for 15 years has meant to me. So happy to pass it on for others to gain insight and HOPE from. Your perspective does matter and its something you can control. I hope you pick to be a survivor with a positive attitude and find an attitude of gratitude for your life.
Have a meaningful week!! Love to all!!
Liz : )
Saturday, April 16, 2011
"Honor A Veteran", "Memory Wall" & "Wall of Pain"
So Happy to Announce 3 New Facebook Community Page Additions--
"Honor A Veteran", "Memory Wall" and our community's own "Wall of Pain"!!
In honor of Veterans' Day, I am so pleased to share a group member's awesome idea to have a place where family and friends can honor their loved ones who serve in the military. Feel free to post the name, rank, number of years in service, and military branch of anyone you would like to HONOR. Share as little or as much information as you want. Thank you to all the brave men and women who serve in our military. Your sacrifices and selfless courage will never be taken for granted or forgotten. We support you ALWAYS!!
Link to "Honor A Veteran"
http://www.facebook.com/group.php?gid=142242355793657&v=app_2373072738#!/topic.php?uid=142242355793657&topic=553
Next is our group's very own "Memory Wall". Feel free to share the names of your friends or family members that have passed on or died. Remember there is no judgment here so you are safe to say whatever you need or want to say. For example: how the loss has effected you and your family; share stories or funny sayings or quotes; share what you might say to the person you have lost if you had one more hour, or one more day with them. Pain of loss is very REAL.
Link to our "Memory Wall"
http://www.facebook.com/group.php?gid=142242355793657&v=app_2373072738#!/topic.php?uid=142242355793657&topic=552
Share your story or journey with pain. It can be as long or as short as you want. Remember its not complaining to tell your story. The communication of pain is healthy for your body, mind, and spirit. I believe its necessary for wellness if you deal with any type of chronic pain or illness or combination of both. Here is your opportunity to tell YOUR STORY...YOUR WAY with no judgment or criticism. Pain Sufferers Speak's Global community is based on being a safe place for you to communicate your pain in any way that works and feels right for you.
Link to our "Wall of Pain"
http://www.facebook.com/topic.php?uid=112276272164064&topic=116
Remember to speak openly about your pain. Its not complaining!! The healthiest way to deal with any type of pain is to share it with someone else. You will feel lighter, and you just might find someone else who completely understands what you are going through. Its wonderful to see our group making connections everyday. Keep posting!!
Have a meaningful week!!
Liz : )
Update Archive under #12 originally posted 11/13/10
Update 6/28/11
"Honor A Veteran", "Memory Wall" and our community's own "Wall of Pain"!!
In honor of Veterans' Day, I am so pleased to share a group member's awesome idea to have a place where family and friends can honor their loved ones who serve in the military. Feel free to post the name, rank, number of years in service, and military branch of anyone you would like to HONOR. Share as little or as much information as you want. Thank you to all the brave men and women who serve in our military. Your sacrifices and selfless courage will never be taken for granted or forgotten. We support you ALWAYS!!
Link to "Honor A Veteran"
http://www.facebook.com/group.php?gid=142242355793657&v=app_2373072738#!/topic.php?uid=142242355793657&topic=553
Next is our group's very own "Memory Wall". Feel free to share the names of your friends or family members that have passed on or died. Remember there is no judgment here so you are safe to say whatever you need or want to say. For example: how the loss has effected you and your family; share stories or funny sayings or quotes; share what you might say to the person you have lost if you had one more hour, or one more day with them. Pain of loss is very REAL.
Link to our "Memory Wall"
http://www.facebook.com/group.php?gid=142242355793657&v=app_2373072738#!/topic.php?uid=142242355793657&topic=552
Share your story or journey with pain. It can be as long or as short as you want. Remember its not complaining to tell your story. The communication of pain is healthy for your body, mind, and spirit. I believe its necessary for wellness if you deal with any type of chronic pain or illness or combination of both. Here is your opportunity to tell YOUR STORY...YOUR WAY with no judgment or criticism. Pain Sufferers Speak's Global community is based on being a safe place for you to communicate your pain in any way that works and feels right for you.
Link to our "Wall of Pain"
http://www.facebook.com/topic.php?uid=112276272164064&topic=116
Remember to speak openly about your pain. Its not complaining!! The healthiest way to deal with any type of pain is to share it with someone else. You will feel lighter, and you just might find someone else who completely understands what you are going through. Its wonderful to see our group making connections everyday. Keep posting!!
Have a meaningful week!!
Liz : )
Update Archive under #12 originally posted 11/13/10
Update 6/28/11
Pain Is Universal
Pain is universal!! Whether its pain of loss, physical pain, emotional pain, spiritual pain--no matter what kind or how it manifests--pain is the same. This may not be exact, but, if you close your eyes, and take yourself to a place where you completely feel everything in and about your life that hurts--that's the place where you get the main ideas of pain. You can't get away from your hurt(s) and all coping mechanisms of all kinds don't fix it. You understand insanity cause you think you aren't far from it right now or some time in your past. Pain is isolating and you feel all alone. Pushing people away and avoiding the public, is a normal human response to chronic pain. Imagine this: Its the middle of the night. You may or may not be alone in your home, but, either way, you are the only one awake. Our kids who love us unconditionally, and can be our greatest cheerleaders, but they are asleep and you would never wake them to share pain. Husbands/Wives/Spouses from the best (most supportive) to the worst, are asleep cause they have to work tomorrow or do whatever it is they do. You are alone with your pain. Alone, Isolated, Desolate, Desperate......This IS PAIN and, if you have felt its grip, than you get it. I used to share a Facebook (FB) account with my husband, Jason, and we have many friends. All alone in the middle of the night, I was/am still alone with my pain. It doesn't matter how many friends you have on FB, MySpace, Twitter, email contacts, etc. In pain, eventually we all notice at some point that we are alone with our hurt(s). This is a place to springboard from positively or negatively through conscious choice no matter whether we are children or adults in pain. Choose wisely, my friends!! Our attitudes about our pain, our life, our family, our doctors, etc, affect everything we do and say. I choose to be thankful. That's right---thankful!! My pain has brought me many blessings. I will further discuss those in future posts. Guilt is a common side affect of pain. The person in pain feels guilty about how their pain affects others in their life--friends and/or family. I believe there is a lot of guilt on both sides of pain. The friends or family watching their loved one in pain, feel guilty asking anything of the one in pain even if they should ask in the example of the Father/child or Mother/child relationship. My kids have told me over and over that they leave things out or don't tell me things at all, cause they don't want to increase my pain. Jason has told me the same thing more than once. I don't want to be out of the loop, and no one does, but its a side affect of pain that few ever discuss. It is with this in mind, that I created this group to provide a place for the open discussion of all types of pain. Living with pain--no matter what kind--seems to have the same side affects on us all. Through sharing, I hope that others will feel not so alone. Post on the wall, start your own discussion, upload pictures and videos related to pain, and generally support each other through the toughest thing that life can send us-- PAIN. I hope by finding common ground, we can all face life with a brighter future. I will post again soon, and promise not to ignore or delete anything posted by any of you unless it hurts some one else. Feel free to complain, rant, discuss, argue, compliment, support, help, or communicate in any way that helps you. You will be pleasantly surprised at how many people GET where you are coming from. Welcome to Pain Sufferers Speak!!! Liz : )
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