Monday, December 26, 2011

Merry Christmas

Merry Christmas to all of you and your families!! Happy New Year!! May 2012 be blessed with peace, joy, love, excellent health, and less pain for all of us!!

Saturday, December 10, 2011

The Old Man AND My Christmas "Gifts" To Each of You

**A LITTLE HISTORY About a poem everyone needs to read**
"When an old man died in the geriatric ward of a nursing home in GRASS VALLEY, CA. It was believed that he had nothing left of any value.
Later, when the nurses were going through his meager possessions, they found this poem. Its quality and content so impressed the staff that copies were made and distributed to every nurse in the hospital.

One nurse took her copy to Missouri.

The old man's sole bequest to posterity has since appeared in the Christmas edition of the News Magazine of the St. Louis Association for Mental Health. A slide presentation has also been made based on his simple, but eloquent, poem.

And this little old man, with nothing left to give to the world (supposedly), is now the author of this 'anonymous' poem winging across the Internet."
Crabby Old Man...

What do you see nurses? . . ... . . What do you see?
What are you thinking . . . . . When you're looking at me?
A crabby old man . .. . . . Not very wise,
Uncertain of habit .... . . . . With faraway eyes?

Who dribbles his food . . . .. . And makes no reply.
When you say in a loud voice . . . . . 'I do wish you'd try!'
Who seems not to notice .. .. . .... . The things that you do.
And forever is losing . . . . . A sock or shoe?

Who, resisting or not . . . . . Lets you do as you will,
With bathing and feeding . .. . .. . The long day to fill?
Is that what you're thinking? . .... . . . Is that what you see?
Then open your eyes, nurse . . . .. . You're not looking at me.

I'll tell you who I am. . . . .... . As I sit here so still,
As I do at your bidding, . . . .. . As I eat at your will.
I'm a small child of Ten . .. . . .. With a father and mother,
Brothers and sisters . . .. ... .. Who love one another.

A young boy of Sixteen . . . .. With wings on his feet.
Dreaming that soon now . . . . ... A lover he'll meet.
A groom soon at Twenty . . . . .. My heart gives a leap.
Remembering, the vows . . . . . That I promised to keep.

At Twenty-Five, now . . . .... . I have young of my own.
Who need me to guide . . . . . And a secure happy home.
A man of Thirty . . . . . My young now grown fast,
Bound to each other .. . . . . With ties that should last.

At Forty, my young sons . . ... . . Have grown and are gone,
But my woman's beside me . . . . . To see I don't mourn.
At Fifty, once more, babies play 'round my knee,
Again, we know children .. . . . My loved one and me.

Dark days are upon me . . . . . My wife is now dead.
I look at the future . . . . . Shudder with dread.
For my young are all rearing . .... . . . Young of their own.
And I think of the years .. . . .. . And the love that I've known.

I'm now an old man . . . . ..... And nature is cruel.
Tis jest to make old age . . . . . Look like a fool.
The body, it crumbles . . . . . Grace and vigor, depart.
There is now a stone . . . . Where I once had a heart.

But inside this old carcass . . . . . A young guy still dwells,
And now and again . . . . . My battered heart swells.
I remember the joys . . . . . I remember the pain.
And I'm loving and living . . . ... . Life over again.

I think of the years, all too few . . . . ... Gone too fast.
And accept the stark fact . .. . . That nothing can last.
So open your eyes, people . . . ... . Open and see.
Not a crabby old man . ... . . Look closer . .. . See ME!!

Remember this poem when you next meet an older person who you might brush aside without looking at the young soul within.
We will all, one day, be there, too!
By: Jim Satnan

I had to share this lovely man's touching wise words with all of you. My grandfather was diagnosed with Alzheimer's in his late 50's when I was about 8 years old. Our family watched this distinguished agriculture professor who had raised his 5 children (my Mom was one of them) on his Junior College salary while farming in the evenings to make ends meet and keep food on the table. My cousins and I have lots of fond memories of his retirement: fishing with him (which was his hobby and pleasure); going to the city dump to find "treasures" to fix--he would rebuild and refinish broken furniture with only hand tools; helping Papaw work in his beloved yard and garden; playing "hide and go seek" with him while he winked at us as we ran past him even though my grandmother didn't like us running in the house; looking forward to him rolling in the wheelbarrow filled with stockings that "Santa" had carefully filled for each one of us (including the adults); watching Papaw kiss his "sugar" (my Mamaw) every night before bed; and I could go on & on. By the time I was age 15, Papaw lived at a nursing home and my Mamaw visited him every single day even though she could barely walk herself. She resisted the move into the nursing home even when he got violent with her, because he did not know who she was or why she wouldn't give him the keys to his truck. The last time I saw Papaw he was locked in a chair he could have taken apart and rebuilt to perfection only 5 short years before. Alzheimer's robbed him of his mind and memories, but all of us in his family will be "living off" our precious memories of him until we see him again in heaven.
The poem brought back all those wonderful memories, plus living with chronic pain as I have for 16 years, I get that feeling of wanting others to "see me" for who I really am and not be blinded by my disabilities. "See me" for what I can still accomplish and not consider my life already over at age 39. "See" the athlete in me who pushes myself constantly, and not the me who is forced to "sit out" due to pain.  "See me" as a dedicated supermom who could organize and run a girl scout event for 250+ little girls while changing a baby (my son who is 12yrs old now) and selling girl scout cookies out of the back of my minivan. "See me" for the consistently hard worker who never had to be told anything twice by the doctors and lawyers I worked for in my 2 careers, and not the unemployed homebound disabled person. Life does go by fast. Children grow up, and leave home as my 18yr old daughter did in August this year. People who you think you can't live without...Die.  Our bodies change and wither as we grow older and wiser even if we do NOT live with pain or illness.  Money comes and goes no matter how much you plan ahead, because NO ONE knows what the future brings.  Its not predictable at all, and just when you think the "plan" is perfect, Life throws you a curve ball.

I have figured out a few things about this thing we call LIFE due to the huge mistakes I have made.  Hopefully telling you my mess ups, will prevent you from making some of them,

**I respect all religions, faiths, and belief systems and accept you just the way you are and promote this on Pain Sufferers Speaak's Global Community every day of the year. Our community practices unconditional love and support for everyone with NO judgment and NO criticism. There is no wrong way to have faith and practice respect, in my opinion.** 

These are my "gifts" to you and your sweet families all over the world--
1.) Do not waste a minute on depression and the blues. It sucks your energy PLUS sucks all the joy out of your life.
2.) Hold on to hope with both hands. If you lose it, life becomes meaningless and miserable.
3.) The people who are precious to you will NOT be here forever. Tell them how you feel about them every chance you get.
4.) When someone leaves you, let them go. They were not meant to be in your life anymore, and trying to "make" them stay NEVER works.
5.) REAL Love is RARE. NEVER take it for granted or throw it away.
6.) Count on GOD! Humans will be humans, and let you down sometimes no matter how much you love and trust each other.
7.) Pain and illness IS part of everyone's life, but they cannot RUN your life unless you let them.
8.) There will ALWAYS be someone worse off than yourself. Count your blessings.
9.) You CAN love unconditionally and agree to disagree.
10.) Judgment and criticism are NOT necessary. They are both a CHOICE you can and should avoid.
11.) Peace and understanding begin at home. If both do not live with you, I suggest you let them in before you find yourself alone.

"Be the change you want to see in the world." ~Ghandi

Wishing you all a Merry Christmas and Happy New Year from my family to yours!! No matter what you believe or what you celebrate....CHOOSE to make each day in 2012 a day of hope, love, faith, and never forget to pass on smiles. They are contagious and laughter always seems to be close behind. Sending you lots of love, gentle hugs for those who need them, long supportive bone crushing hugs to those who want them, and May God shower each of your homes and families with abundant blessings! Liz xoxo

Enjoy The New Additions To Our Blog

So happy to announce that our blog has finally gone truly GLOBAL! Thanks to Google Website Translator, you can pick any language and enjoy our blog in your native tongue. 

Now you can SEARCH our blog including all posts AND all "Helpful Links" to find exactly what you need. If you are listed in the "Helpful Links", your blog and all your posts are automatically searched anytime someone does a search on Pain Sufferers Speak's Main Blog. This will mean more traffic for you on your blog or website.

PLUS Now you can follow our blog through EMAIL for the first time! AND You can still subscribe to our RSS and many other feed options, and join through Google, and Networked Blogs as well.

All 3 NEW Additions are available right now! Come check them out!!

Have a wonderful weekend Everyone!! Sending you all love, hugs and many blessings for happiness and peace during this Holiday Season--no matter where you are and what you celebrate!! Liz : )

Friday, November 18, 2011

"No Pain, No Gain" from A New Perspective

"No Pain, No Gain" used to be my motto back in Jr high in my teens. I played all sports very competitively and never considered the long term effects on my body. Understand that sports is not the reason I have degenerative disc disease, but I will always wonder how much my "No Pain No Gain" attitude from back then still affects me today. I wish I had been encouraged to take care and love my body instead of abusing it. At least I can say with pride that I have encouraged both of my kids to think long term always and love their bodies that they were blessed with. I miss sports but not the body abuse side of it. Loving yourself and encouraging your own healthy self esteem is essential to everyone. Give yourself a hug today and love your body for all the things it does right. Living with illness and pain tends to give us all a reason for self loathing and hatred. FIGHT IT!! Because if you change your perspective, and decide to love your self and find the good in yourself then you will bolster not only your body image and self esteem, but you bonus better health, too. "Keep an optimistic outlook--its proven to prevent a host of heart problems. According to a roundup of Harvard researchers a perennially sunny disposition will help you lower your blood pressure, ward off heart disease, heal faster and live longer. Its not just your heart: multiple studies show that a cheerful outlook can ward off other health problems and add years to your life." (quoted from an article in Prevention Magazine, page 124, of the October 2008 edition) For more see

Written By:
Liz Hall
Creator and Administrator for Pain Sufferers Speak's Global Community

Tuesday, October 25, 2011

Living With An Invisible Illness

While from the outside I may seem normal,
It’s the part that you can’t see,
The constant pain and struggles within,
Are ever so apparent to me.
Although I may wear a smile,
Often times it's covering the tears,
Yet not tears because of sadness,
As it often may appear.
Don’t be too quick to judge though,
Because there is so much more than is known,
What may seem to look like one thing,
Just might turn to prove so wrong.
I may sometimes seem unfriendly,
Or too centered around self,
Because sometimes standing takes all I’ve got,
And there is just no energy left.
Sometimes my words may sound awkward,
My communication may not always convey,
My true inner thoughts and feelings,
Aren’t always expressed by what I say.
You may think that I’m not really listening,
Sometimes my face or speech may not show,
But I do hear every word you say,
I really want you to know.
The information doesn’t always process,
As quickly and as clear,
And sometimes it takes me longer,
To interpret what I hear.
I possibly miss many opportunities,
To offer needed love or support,
Because sometimes it just takes to long,
For my thoughts and words to sort.
So if my actions seem inappropriate,
In the things I say or do,
I hope that you can understand,
That it is not because of you.
There are times I get discouraged,
When forced to accept my inability--
It’s hard to admit my limitations,
And it leaves me feeling so guilty.
Yet every moment is a reminder
As I look all around,
The effort it takes just to get through the day,
Just picking my feet up off the ground.
I am not looking to find pity,
I am just attempting to explain,
That the person that you may often see,
And the real me aren’t exactly the same.
You may not see the peace and joy,
When you look upon my face,
But I know that each day I live,
Is because of God’s amazing grace.
It is hard to always be cheerful,
When the pain is so very real,
And not everyone can comprehend,
The extend of how I feel.
I don’t see it as all bad though,
Although I’d much rather it not be so,
But I know that if I must endure,
God will strengthen me as I go.
It may seem as if I take no pride
In the way that I look or dress,
However, there might be much more going on,
Inside of the big mess.
My home may not be nice and neat,
My bed not always made,
The laundry may not all be done,
And often it makes me ashamed.
But I must only do what I am able,
Each day I have to choose,
What is most important right then,
And the tasks I am able to lose.
All the plans and dreams I once held,
Now don’t seem quite so clear,
Yet I feel a peace within,
As my Lord keeps drawing me near.
To have a chronic illness,
Or a disability that one must bear,
Somehow puts life into perspective,
And helps to make us more aware.
I realize now that each day I live,
Is a gift from God above,
It is hard not to lean on Him,
Or to look to His great love.
I now can fully understand,
On my own, there is nothing I can do,
It is only be faith and prayer,
That I can make it through.
It may seem an exaggeration,
No one can always feel so bad,
But only those who have walked in these shoes,
Can appreciate the battles that I have had.
I see so many people less fortunate than me,
Don’t have to look very far,
There are so many suffering all around,
It doesn’t matter who you are.
Circumstances and illnesses can hit unexpectedly,
And you can never really be prepared,
It may be difficult to understand,
Leaving you vulnerable and feeling scared.
I must constantly guard my thoughts and mind,
As Satan always tries to bring me down,
He wants me to feel hopeless and unworthy,
And turn my smile into a frown.
It is hard not to get depressed,
When I see the burden my family must bare,
The fact I cannot always meet their needs,
No one could be more aware.
There are times I feel like giving up,
When I look too far ahead,
But I know if my loved ones were given the choice,
They would just choose to have me here instead.
There are so many ups and downs,
New challenges each day,
I must strive to keep my eyes on God,
So that I be not led astray.
It would be so difficult to cope,
Without God, my hope would all be gone,
Because through submitting to Him in prayer,
Is when my weaknesses are made strong.
So when you see the way I look,
When my insecurities are in view,
Base who I am on what’s inside,
Not by the things that I can do.
The greatest lesson that I have ever learned,
Is the reason that I am here on earth,
Is not to live for self and gain,
For in these things are not my worth.
God has a purpose for my life,
Although the details I may not see,
He still has it under control,
And is continually watching over me.
Maybe one day I will be well,
And my health He will restore,
But if that is not in God’s will,
I will still praise Him ever more.
If this suffering can bring honor to Him,
I will gladly accept the call,
Because of His great love for me,
He suffered and gave His all.
I have to believe that what I am going through now,
Will somehow work together for good,
And one day it will be revealed,
And all things will be understood.
While I still worry about what you think,
More the example that I may show,
I am learning so much more each day,
And this has really helped me to grow.

By: Mary Hastings, Written May 2003

Remember: Pain Sufferers Speak's Global Community respects all religions, faiths, and beliefs. 

This was shared on Pain Sufferers Speak's Support Family Group on Facebook by Auntie Stacey Bryce . We have 345 members in our private community and if you wish to join, just send a request to my email or facebook.

Love to all my Pain Brothers & Pain Sisters All over the world!!
Liz : )

On Letting Go

To "let go" does not mean to stop caring.
It means I can't do it for someone else.
To "let go" is not to cut myself off.
It's the realization that I can't control another.
To "let go" is to admit powerlessness,
which means the outcome is not in my hands.
To "let go" is not to try to change or blame another.
It's to make the most of myself.
To "let go" is not to care for, but to care about.
To "let go" is not to fix, but to be supportive.
To "let go" is not to judge, but to allow another to be a human being.
To "let go" is not to be in the middle, arranging all the outcomes,
but to allow others to affect their own destinies.
To "let go" is not to deny, but to accept.
To "let go" is not to nag, scold, or argue,
but instead to search out my own shortcomings and correct them.
To "let go" is not to adjust everything to my desires,
but to take each day as it comes and cherish myself in it.
To "let go" is not to regret the past, but to grow and live for the future.
To "let go" is to fear less and to love more.
Author Unknown
Shared by Sharon Johnson on Pain Sufferers Speak's Support Family Group on Facebook. Let me know if you want to join and I will happily add you to our private community.
Wishing all of you a productive week filled with happiness and love!!
Liz : )

Thursday, October 20, 2011


Life will throw many negatives your way.
Sometimes you'll laugh.
Sometimes you'll cry.
That's the very essence of you being alive!
You'll have good days and you'll have bad.
Sometimes you'll feel you're riding high,
While others you'll feel you're in a pit.
Both feelings and all in between, are part of life, my friend.
You will have sickness from time to time,
Or even perhaps have a loved one die.
Sometimes you will have plenty,
While others just barely getting by.
But in the midst of all the tears and pain,
How you react will make the difference in life.
Remember to smile and wave until the grave!
May not be easy, but it's the only way.
Written By: Rogelio Gomez

Saturday, October 15, 2011

Monster Inside Of Me

I have been ill now for sixteen long years,
Every time I'm up, my illness reappears.
It is like a monster's just eating at me,
...Oh help me God, I just want to be free.
When I get this way I just want to flee,
Free of the pain that is inside of me.
I ask myself if God is even listening,
Because this pain I have is so piercing.
Physically, I can do nothing, except for sitting all day,
I have guilt and sadness, and my world is painted grey.
These feelings I have never seem to stray,
They make me feel like I want to hide away.
The depression I get is truly the worst,
It makes me feel as though I've been cursed.
Everyday I pray on bended knee,
Why is God not listening to me?
Most days I just want it to mend,
The pain is so great, maybe it'll end.
My kids think this monster is such a crime,
They have helped me through my worst of times.
I don't understand the reason why,
God makes me feel like I want to die.
One day I will know the answer from our Lord,
And maybe I'll get my just reward.
All I can do is continue to pray,
For God to stand by me and not go away.
To protect and guide me through this ghastly ordeal,
To mask and to conceal this pain that's surreal.
~Author Unknown

Happiness, Peace and Joy You Will Find

The law of attraction does not care
What ever you’re thinking will take you there
It does not matter who you are
Or what ever state you’re in
You have the power in you,
And this is where you begin
Think of a memory that makes you feel great
Now hold it right there till you’re fixed in that state
This blocks out any negative woe
You do have the power to just let it go
Feeling grateful is a great place to be
It’s that sparkling feeling inside of thee
When you’re grateful you’re thinking in a positive way
It keeps you on track of your habit per say
When you can conquer your state of mind
Happiness, peace, and joy you will find!!!
Love Simone
From the group "Great People"
Shared by Jacqueline Lamoureux on
Pain Sufferers Speak's Support Family
Group on Facebook

I Am An African

I am an African
Not because I was born there
But because my heart beats with Africa’s
I am an African
Not because my skin is black
But because my mind is engaged by Africa
I am an African
Not because I live on its soil
But because my soul is at home in Africa
When Africa weeps for her children
My cheeks are stained with tears
When Africa honours her elders
My head is bowed in respect
When Africa mourns for her victims
My hands are joined in prayer
When Africa celebrates her triumphs
My feet are alive with dancing
I am an African
For her blue skies take my breath away
And my hope for the future is bright
I am an African
For her people greet me as family
And teach me the meaning of community
I am an African
For her wildness quenches my spirit
And brings me closer to the source of life
When the music of Africa beats in the wind
My blood pulses to its rhythm
And I become the essence of sound
When the colours of Africa dazzle in the sun
My senses drink in its rainbow
And I become the palette of nature
When the stories of Africa echo round the fire
My feet walk in its pathways
And I become the footprints of history
I am an African
Because she is the cradle of our birth
And nurtures an ancient wisdom
I am an African
Because she lives in the world’s shadow
And bursts with a radiant luminosity
I am an African
Because she is the land of tomorrow
And I recognise her gifts as sacred
***By: Wayne Visser

Monday, October 10, 2011

Introducing (and finally going public) Pain Sufferers Speak RAW

Right now you are reading this post on Pain Sufferers Speak's Main Blog For Everyone.

***Now I want to introduce our global community's 2nd Blog for ADULTS ONLY called Pain Sufferers Speak RAW!***

Warning: Some Profanity and Adult Content and Gritty Daily Reality Guaranteed!!
Here is the description for the Blog:
"Unplugged and unsensored. I am gonna cuss, rant, discuss my views on controversial topics, shower chair antics, wheelchairs I wish to leave behind, poop talk, piss, puke, unhealthy relationships in my past. Gonna be a wild RAW unsensored Ride for Pain Sufferers Speak. Still intend to respect privacy, and basic ethics of course.  No lies of omission here 100% Unsensored. This is the REAL WORLD so if you want the REAL DEAL subscribe to my RSS Feed and pull up your big boy pants or big girl panties--This blogs for you! Willing to share only because I refuse to accept that I am the only one this stuff happens to.  Love to have your input, thoughts, comments, questions or snide remarks anytime!"

So come join me for an unsensored ride through life with chronic pain and illness. Its gonna be a bumpy fun ride, Pain Brothers and Pain Sisters!!

Click the link below to go directly to Pain Sufferers Speak RAW "Adults Only" Blog
The "Multi Elements" to Pain Sufferers Speak's Global Community are: 1) our Main Blog--Pain Sufferers Speak; 2) our "For Adults Only" Blog--Pain Sufferers Speak RAW; 3) Facebook Community Page with over 50 Showcase topics loaded with FREE INFO; 4) Twitter as @painspeaks; 5) our EXCLUSIVE "Members Only Secret Family Support Facebook Group" with 24/7 support for everyone; 6) OPEN GROUP on LinkedIn called Pain Sufferers Speak just for FREE PROMOTION and Expanding Your Professional Network, 7) BranchOut, Facebook's Professional profile builder, 8) Vitality Link profile, 9) We are traded now on Empire Avenue as PAINSPEAKS / Liz Hall, 10) profile for networking and community growth--We have the rare priviledge of being chosen as a Founding Trust Anchor on their site.
Each part is unique and has different benefits--Join only 1 part OR all---Its up to you!!

Liz : )

People May Scatter, But Hope For Your Future IS A Choice

Wanna figure out who your real friends are? Live in chronic pain or be diagnosed with a chronic illness and people scatter--I know because I have seen it happen in my own life. I am always the strong one to such an extent that a cousin of mine (who I am very close to) actually told me to suck it up at my Grandma's funeral!! She said she couldn't take if I was gonna cry. That was in 2000 and I was not capable of telling her how I really felt about what she said then and I never have, because I know it would change our relationship forever in a negative way. When others don't understand that being strong only hides pain, but it does not erase it. Plus when others don't live with pain, then they tend to judge you and maybe not even believe your pain. This judgment can come from family and friends--When I was recovering from my first back surgery at age 24 not one of my friends came to visit me at first. Finally after 4 weeks my best friend in the world came and gave me a sponge bath and I actually cried--not because it hurt (it did big time) but more because she was the only one. I lost everyone else who I thought were real friends--turns out they were fair weather friends. Only a handful of my relatives visited and a few others sent cards and I come from a huge family!! Now I know who my real friends and family are, and I only count on them. It sucks to be alone in pain. It hurts physically, emotionally and spiritually--it is like a death. Someone finally told me I was mourning the loss of my former healthy self and my career. I think we all do our share of mourning and should give space and time to feel that. We go through the same process--denial, anger, bargaining, depression and finally acceptance--its the 5 stages of grief. Yes, showing your pain or grief or emotions takes strength and the more you show the stronger you are. That is not to say that if you are not ready for acceptance that you should be stronger--its a process and each stage is necessary and needs and takes time. You must give yourself permission to take the time and feel each stage. Each person takes a different amount of time with each stage--no pressure to rush because then it will only take longer. You must love and accept yourself first (and most importantly) before you will ever get out of the depression phase. That was hardest for me to accept. I didn't want to love the new "broken" me--with degenerative disk disease that has invaded my once healthy and strong back--now 4 disks are herniated and I have neuropathy down both legs with burning pain and numb spots that cause my balance to be off and me to fall occasionally. How could I love that? How could anyone love that? My husband of 18 years answered these questions best when he said, "How could I stop loving you? I commited to 'in sickness and in health' and I meant it. Your disability and failing body took nothing away from my love for you." The reality of his unconditional love brought me back from depression. If he could love me this way, then I had to find a way to love myself. I do love and value myself again, and I hope as you read these words that you have found a way to love yourself, too. Some of you are stronger than me, and will find a way to love yourself without anyone else. You know that your disability, illness, pain or suffering is only a part of you, it is NOT all of you. Your limitations do NOT have to define you or limit your mind......unless you let them. I have found amazing inner strength and inner beauty in everyone who suffers with chronic pain and chronic illness, or lives with any type of disability. My sincere hope is that you can, not only see these traits in yourself, but you can harness them and use them to reach your goals and acheive your dreams. From your goals and dreams, you create hope for the future--which is necessary for us all. Don't let the changes you see in your body stop you from having goals and dreams and hope for the future!!!

Saturday, October 8, 2011

Many Blessings From All Over the World

Posted by: Mimi Glover

"Mother, Father, God, Goddess, Universal Power.
Remind us daily of the sanctity of all life.
Touch our hearts with the glorious oneness of all creation.
As we strive to respect all the living beings on this planet.
Penetrate our souls with the beauty of this earth,
as we attune ourselves to the rhythm and flow of the seasons.
Awaken our minds, with the knowledge to achieve
a world in perfect harmony. Grant us the wisdom to realize
that we can have heaven on earth." - Jo Poore

Posted By: Estee Wesley
Posted By: LouAnn Wilmoth

Posted By: Sharon Johnson

"Peace is not something you wish for; It's something you make,
something you do, something you are, and
something you give away." --Robert Fulghum
Posted by: Jacqueline Lamoureux

Posted By: Auntie Stacey Bryce

Posted By: Julie Bame

Posted By: Deborah Clemmons
Posted By: Patricia Gonzalez Guerra-Lara
Seek God, Be FREE from all that Binds U. Love and pray for those who persecute you..
Remember that God loved u first..... Amen.... Thank u Jesus ♥♥




Posted By: Carolina Breunesse

Posted By: Monique Millender

Posted By: Cindy Blevins
These are posts from many Pain Sisters from all over the world!  I got permission from all of them to share these with all of you. I would love to have you send me your favorite blessing, quote, picture, poem, bible verse, anything that has a special meaning for you and your family, your culture, your religion or set of beliefs! Love to include stuff from all of you on Pain Sufferers Speak's Blog! Next post will be from the Pain Brothers! Get those entries to me as soon as possible!

Send them to my email:
Or my facebook:

Sending you love, hugs and showers of blessings always! Liz : )

Friday, October 7, 2011

The Family That Prays Together, Stays Together

Let's rally together
In good times,
And in stormy weather,
Let's rally together!

Let's continue to rejoice
When things are at their peak,
Or though the way be bleak,
Let's continue to rejoice!

Let's sing His song
When all doth roll along,
E'en when we feel we've lost our song,
Let's sing His song!

Let's pray and pray more
When there be an open door,
And when we feel we cannot anymore,
Let's pray and pray more!

Let's honour our king
In everything!
For "He" is the "One"
From whom all things come!
We have had a Sioux Indian Prayer, a Buddhist Healing Prayer and so I thought this was a great addition to our Prayers from all over the Globe!
Thank you Elaine Walker for posting this beautiful prayer!
Remember: Pain Sufferers Speak's Global Community respects all religions, faiths, and beliefs. We accept everyone for exactly who they are and we love all our Pain Brothers and Pain Sisters all over the world!! Wishing you all many blessings and sending each of you love and hugs! Liz : )

Sunday, September 25, 2011

1st Radio Appearance for Pain Sufferers Speak's Global Community

UPDATE 10/7: The show went great and I had a wonderful time spreading the word about Pain Sufferers Speak. I am working on a youtube video with the audio tract from the show so it can be available here on the blog always.  

The Positive Experience Show with Liz Hall
Please join me and Joseph Aquilino on his The Positive Experiance Show here on Pain Sufferers Speak's BLOG--You ONLY have to Register FREE IF you want to CALL IN AND PARTICIPATE!! Looking forward to chatting with you today!!--Just got this verified--sorry for last minute info!! ♥ 
THIS Tuesday,  September 27, 2011 at 12pm-1pm  EST--Eastern Standard Time/USA/New York City
(310) 982-4253 is the call in number for everyone including the guests.

Phone lines will be open for the full hour for comments and questions from the listeners on the air.

You can embed the show on your website, you can listen directly from your website... you can download the show to your computers, you can listen to an archive of the show on the site and you can share the channel on any social network.
Here is the link to the facebook OPEN Invitation--Invite all your family and friends all over the world!! Be sure to go on a register on blog talk radio link so you can hear us LIVE or by archive after the show!!
 Any questions you have please type it on the invite facebook wall and we will get back to you ASAP-- as soon as possible. : )

If you like to join us on blogtalkradio chat LIVE during the show and ask questions OR listen-- you must sign up and register for the blogtalkradio main site at
So excited and psyched to share Pain Sufferers Speak's Global Pain Community with the world LIVE!!! Looking forward to talking with you, answering your questions and sharing our community so others can find us and have a safe haven for communicating and expressing pain without judgment ort criticisim and unconditional love and support!!
Liz : )

Saturday, September 24, 2011

Humor Is The BEST Medicine

I had to share this with all of you! Pain Sufferers Speak's Facebook "Secret" Support Family Group has a new member who joined about 2 weeks ago. He is a sweet hearted, fun loving comedian who loves to post jokes, humorous comments, and has consistenly brought all of us smiles and giggles since he joined! Here is a perfect example: 
His dizzy aunt ------------ Verti Gogh

The brother who ate prunes------------ Gotta Gogh

The brother who worked at a convenience store ------ Stop N Gogh

The grandfather from Yugoslavia ----------U Gogh

His magician uncle --------------Where-diddy Gogh

His Mexican cousin --------------- A Mee Gogh

The Mexican cousin's American half-brother ------------ Gring Gogh

The nephew who drove a stage coach ------------- Wells-far Gogh

The constipated uncle ---------------- Can't Gogh

The ballroom dancing aunt ---------------- Tang Gogh

The bird lover uncle --------------- Flamin Gogh

The fruit-loving cousin -----------------Man Gogh

An aunt who taught positive thinking ------------- Way-to-Gogh

The little bouncy nephew ------------ Poe Gogh

A sister who loved disco --------------- Go Gogh

And his niece who travels the country in an RV --- Winnie Bay Gogh

Smiling ?? . . .. there ya Gogh
Thank you, Lee Sr. Rager!! You are awesome, Sweet Pain Brother!! We are blessed to have you in our Support Family!! Liz : )

Thursday, September 15, 2011

Speak Up!

Chronic Pain Sufferers: Speak Up!

Tuesday, September 16th, 2008
This post was written by Melanie Matthews

chronic painIn pain? The Joint Commission is recommending that sufferers of chronic pain “speak up.” The Joint Commission is launching a national campaign to help Americans work with their healthcare professionals to better manage pain. The new education campaign is part of The Joint Commission’s award-winning Speak Up™ program that helps patients become more informed and involved in their health care, and coincides with Pain Awareness Month in September:
The framework of the Speak Up™ program urges patients to:

  • Speak up if you have questions or concerns, and if you don’t understand, ask again. It’s your body and you have a right to know.

  • Pay attention to the care you are receiving. Make sure you’re getting the right treatments by the right health care professionals. Don’t assume anything.

  • Educate yourself about your diagnosis, the medical tests you are undergoing, and your treatment plan.

  • Ask a trusted family member or friend to be your advocate.

  • Know what medications you take and why you take them. Medication errors are the most common health care errors.

  • Use a hospital, clinic, surgery center, or other type of health care organization that has undergone a rigorous on-site evaluation against established state-of-the-art quality and safety standards, such as that provided by The Joint Commission.

  • Participate in all decisions about your treatment. You are the center of the healthcare team.

  • ********************

  • I found this online and had to share it with all of you! This is AWESOME advice for ALL patients, not just people who suffer with chronic pain and chronic illness!!
    Have a meaningful day! Sending love and blessings to all of you!! Liz : )

    Tuesday, September 13, 2011

    SHOWCASE ON: Lupus

    Understanding Lupus
    From Lupus Foundation of America

    If you or a family member has been diagnosed with or are being evaluated for possible lupus, you will want to know as much as you can about the disease. "Understanding Lupus" will provide you with a guide to lupus so that you can better understand what lupus is.

    What is Lupus?
    This section will provide you with an overview of what lupus is and is not. How does lupus affect the body and how prevalent is lupus in the United States.

    What Causes Lupus?
    No one knows what causes lupus. Scientists think that people are born with the genes to develop lupus and that something brings on or "triggers" the disease and symptoms. However, a combination of genetics (heredity), environment, and hormones is involved.

    Forms of LupusThere are generally four recognized forms or types of lupus: Cutaneous (skin) Lupus Erythematosus, Systemic Lupus Erythematosus, Drug-induced Erythematosus and Neonatal Lupus. This section will discuss in more detail the different forms of lupus and how they can affect you.

    What are the Symptoms of Lupus?
    Symptoms of lupus vary widely depending on the individual case and the form of lupus present. Most people with lupus do not experience all of these symptoms. The section only serves to alert people to clues that might indicate the presence of lupus in an undiagnosed person.

    What Kind of Doctors Treat Lupus?
    The type of doctor or doctors that you may have treating your lupus will depend on the form of lupus you have and how the lupus is specify affecting you. It is not uncommon for a person with lupus to have a group or team of doctors working together to help develop the best treatment plan for you.

    What are the Risks for Developing Lupus?
    Many risk factors attribute to the development of lupus. This section will provide an overview on various risk factors that may contribute to the development of lupus.

    Prognosis and Hopeful Future
    We now know more about lupus than ever before. Dedicated researchers are on the brink of significant breakthroughs in the underlying science of the immune system, while public awareness and understanding continue to grow. Improvements in diagnosis, a greater understanding of how medications can work together to control symptoms, and increased knowledge of the effects of the disease have allowed better management of lupus over time. Today people with lupus are leading healthier lives and living longer than at any time in history.

    Check out our new interactive "Could you have lupus?" symptom checklist!
    This interactive tool was designed to help you better understand the many ways that lupus can affect your body. Each highlighted section features a text box which provides a brief description of how lupus can damage a particular organ or system, from the brain to the blood vessels. You will also be able to go further into the Website for more detailed information. Included is a set of health questions for you to answer that will help your doctor know if you may be at risk for lupus.

    The History of Lupus Erythematosus
    Take a short walk into the history of lupus from its initial scientific observations and declaration as a disease through the advancements in its therapeutic treatments. How did lupus get its name? When were the first symptoms identified? Who were the leading medical scientists working to define and develop treatments for this disease?

    Sign up to receive LFA's free enewsletter
    Stay in touch with the LFA's latest news on developments in lupus research, education and advocacy, by signing up to receive this enewsletter.

    Ask the Experts
    Check out the LFA "Ask the Expert" archives and learn more about lupus on a variety of topics including skin issues, pregnancy, pediatric lupus, kidney disease, women and men’s issues, medications and more. Our panel of nationally-renowned lupus medical experts provides insight, support and answers into the puzzling and often times frustrating issues of lupus. We invite you to submit your own questions into the LFA through our website.

    LFA Approved Publications
    The Lupus Foundation of America Patient Education Committee has reviewed and approved a number publications and other materials for use in educating individuals and families about lupus and its health effects.

    Related Information
    Newly Diagnosed with Lupus: Learning from the Experts - Audio Podcast and Slides
    Dr. Diane Kamen, Medical University of South Carolina
    Thursday, July 29, 2010

    Dr. Kenneth Kalunian, University of California, San Diego
    Monday, February 22, 2010
    ** PDF files require Adobe Acrobat Reader. Download it now from the Adobe website.
    15 Questions with Dr. Bob Katz on "Understanding Lupus"


    The above link takes you to Pain Sufferers Speak's facebook SHOWCASE ON: Lupus with many more resources.
    The timing of this blog post coincides with Monique Millender's "31 Days of Life with Lupus Blog Challenge" where YOU have a chance to win her very first giveaway--A Sickie Pamper Basket!!! (I requested to help promote her awesome challenge and Pain Sufferers Speak is NOT entered in the give away by choice. This is about Lupus awareness and advocacy. Good Luck to all those who participate in the challenge!!

    Here is the link to A Messy Happiness Blog

    I do NOT have Lupus, however through Pain Sufferers Speak I love to promote awareness, advocacy, prevention and the sharing of FREE medical information.

    For all of those who live with Lupus, there are many of you out there and Pain Sufferers Speak's Global Community will always be here to support and love you unconditionally. Hugs & Blessings to all of you!! Liz : )

    Friday, September 9, 2011

    If You Could Walk In My Shoes

    *******This was posted on "Pain Sufferers Speak's Support Family" secret facebook group by both Pain Sisters, Sheila Wall and Cindy Blevins! Sometimes I wish for a LOVE IT button and this is definitely one of those times. Its perfect for our global community!*********


    If You Could Walk In My Shoes

    If you could walk in my shoes,
    You would see, I paid my dues,
    I worked hard my whole life through,
    Even though, I no longer do.

    You would see how hard I tried.
    You would see how hard I cried.
    Can't you see my condition is real,
    Even though you can't see what I feel.

    Your support could lift me up.
    That would be amazing luck.
    My disability; you can't see,
    But I need you to believe in me.

    Trust me when I say,
    A friend could make my day. 
    Please lend a helping hand,
    With your support, I can stand.

    A little goes along way.
    A good friend won't turn away.
    A little kind word can lift my soul.
    A little kind word can make me whole.

    Written By: Manuela McPhee on May 23, 2009

     ********No matter whether you wore work boots or high heels, I know you get it! Wishing a Fantastic Friday to all my Pain Brothers and Pain Sisters all over the world!! Plus, sending you supportive gentle hugs and many blessings for an awesome weekend with your family and friends! Liz : )

    Monday, September 5, 2011

    Restorative Slumber--The Importance of Napping

    July 26, 2011
    Restorative Slumber
    The Importance of Napping

    A short nap during the afternoon is common in many countries and can provide an energy boost and clearer senses.

    As we focus on the many obligations we gladly undertake in order to create the lives we want, sleep is often the first activity that we sacrifice. We’re compelled by both external and internal pressures to be productive during many of our waking hours. While this can lead to great feats of accomplishment, it also disrupts the body’s natural cycles and leaves us craving rest. Napping represents a pleasurable remedy to this widespread sleep deprivation. Though judged by many as a pastime of little children or the lazy, the need for a nap is a trait that all mammals share and an acceptable part of the day in many countries. It is also a free and effortless way to improve our health and lift our spirits. A nap is relaxing and can improve our mood, vision, reflexes, and memory.

    Lack of sleep, whether ongoing or the result of a single night’s wakefulness, puts stress on the body and mind. It can negatively impact your physical and mental health. At one time, napping was considered a natural part of life. In the past hundred years, however, electricity and modern conveniences have provided us with more time to engage in personal and professional activities. Consequently there is now less time for sleep. A mere ten minutes of sleep in the middle of the day can leave you feeling more cheerful and alert. A half-hour long nap can sharpen your senses and refresh your energy reserves, and a shorter nap can even sustain you through a long day. Napping can help you make up for lost sleep and serves as a supplement to your usual sleep schedule. You may need to give yourself permission to nap by making naptime a part of your day.

    Feelings of guilt about napping or being preoccupied with other activities can keep you awake when you are trying to take a nap. If you need help, surround yourself with soft pillows and blankets or soothing music. Try to take a nap at the same time each day and use an alarm clock to ensure that you don’t fall into too deep a sleep. Learning to nap and enjoying its benefits can help you reclaim your natural right to nap. You nourish your being every time you take a nap
    For more information visit

    This article is printed from DailyOM - Inspirational thoughts for a happy, healthy and fulfilling day.
    Register for free at

    This was posted on Pain Sufferers Speak's Support Family facebook "secret" group by Jacqueline Lamoureux. Thanks Jacqueline and Daily OM!! Liz : )

    Saturday, September 3, 2011

    SHOWCASE ON: Lyme Disease

    What Is Lyme Disease?
    Lyme disease is an infection caused by bacteria called Borrelia burgdorferi.
    How is it transmitted?
    The bacteria are transmitted to people and animals by the bite of an infected blacklegged tick, Ixodes scapularis, commonly called the deer tick. Although other types of ticks and some insects have been shown to carry the Lyme bacteria, to date, transmission of Lyme through those vectors has not been proven.
    The bacteria can also be passed through the placenta of a pregnant woman to the fetus—congenital transmission.
    The DNA of the bacteria has been found in breast milk, but no transmission has been proven to date in humans.
    The Lyme bacteria have been proven to survive blood banking conditions; however, to date, no transmission has been proven through blood transfusions in humans. Studies have shown transmission through this route in mice in the lab.
    There is no proof to date that Lyme is sexually transmitted, although some preliminary studies have found PCR positives for the DNA of the Lyme bacteria in semen and in cervical tissue. These findings do not prove sexual transmission, but some physicians feel because the Lyme and syphilis spirochete (bacteria) are similar, Lyme may be sexually transmitted.

    Lyme Signs and Symptoms
    General early signs and symptoms:
    EM (bull’s eye) rash at bite site (less than 50%), other types
    chest pain or rib soreness, shortness of breath, heart
    palpitations, pulse skips, heart block, heart murmur or valve prolapse.

    nausea or vomiting, difficulty eating, change in bowel function
    ( constipation, diarrhea), gastritis, abdominal cramping, irritable bladder or bladder
    dysfunction, cystitis.
    joint/muscle pain in feet, swelling in toes, balls of feet, ankle pain, burning in
    feet, shin splints, joint pain and/or swelling, stiffness of the joints, neck or back,
    muscle pain or cramps that may migrate, neck creaks and cracks, neck stiffness,

    twitching of the face, eyelids or other muscles, headache, tingling, numbness,
    burning or stabbing sensations, facial paralysis (Bell’s palsy), dizziness, poor balance, increased
    motion sickness, light-headedness, wooziness, difficulty walking, tremor,
    confusion, difficulty in thinking or with concentration or reading,
    forgetfulness, poor short term memory, disorientation (getting lost, going to
    wrong place), difficulty with speech, double or blurry vision, eye pain,
    blindness, increased floaters, increased sensitivity to light or sound, buzzing or
    ringing in ears, ear pain, deafness, seizure activity, white matter lesions, low blood pressure.

    mood swings, violent outbursts, irritability, depression, disturbed sleep (too
    testicular pain / pelvic pain, menstrual irregularity, milk production (lactation),
    sexual dysfunction, loss of libido.
    fever, sweats, or chills, weight change (loss or gain), fatigue, tiredness,
    hair loss, swollen glands, sore throat, difficulty swallowing, swelling around the eyes.
    much, too little, early awakening), personality changes, obsessive compulsive
    disorder, paranoia, panic anxiety attack, hallucinations.

    The LDA (Lyme Disease Association) has as one of its goals to stop the spread of Lyme & other tick-borne diseases. Tick checks are very important, as is proper tick removal. The following links may be helpful in addressing what is happening in the area of prevention and control.

    Tick Removal
    Improper removal of ticks greatly increases the risk of acquiring tick-borne infections. Squeezing the tick or putting substances on the tick to try to make it "back out" may aggravate it enough that it injects into you whatever disease organisms are inside it.


    • Do not burn or use any substance on tick
    • Do not grasp, squeeze, or twist body of tick
    • Grasp tick close to the skin with tweezers
    • Pull tick straight out
    • Use antiseptic on skin
    • Disinfect tweezers
    • Wash hands thoroughly
    • Always see a physician for possible diagnosis, testing, and treatment
    • If desired, can save tick for testing, preferably alive, in a zippered plastic bag or a closed container with a moist cotton ball.

    Some examples of tick-testing labs:

    IGeneX Labs, Palo Alto, CA: 800-832-3200
    MDL, Mt. Laurel, NJ: 877-269-0090
    NJ Labs, New Brunswick, NJ: 732-249-0148

    Helpful Links With More Info

    National Pesticide Information Center


    Tackling Ticks That Spread Lyme Disease

    MaxForce Bait Box - Do an end run around ticks

    FREE Prevention Poster

    Protect Yourself: Things We Wish We Had Known About Lyme (English and Espanol)

    10 Facts About Lyme Disease
       Prevention article & radio Interview

    Lyme Disease Association


    The above link takes you to Pain Sufferers Speak's Facebook SHOWCASE ON: Lyme Disease with many more resources.

    I do NOT have Lyme Disease, however through Pain Sufferers Speak I love to promote awareness, advocacy, prevention and the sharing of FREE medical information. 

    For all of those who suffer with Lyme Disease, there are many of you out there and Pain Sufferers Speak's Global Community will always be here to support and love you unconditionally. Hugs & Blessings to all of you!! Liz : )